SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder

SkillTalk：为患有自闭症谱系障碍的青少年父母提供围绕性健康主题的沟通培训

• 批准号: 10693234
• 负责人: REGINA FIRPO-TRIPLETT
• 金额: $ 26.54万
• 依托单位: DFUSION, INC.
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-20 至 2025-03-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10693234
• 关键词: Address; Adolescent; Age; Attitude; Awareness; Behavior; Behavioral; Benchmarking; Child; Clip; Communication; Companions; Complex; Development; Diagnosis; Education; Educational process of instructing; Effectiveness; Evaluation Studies; Face; Frequencies; Friends; Fright; Health Knowledge Attitudes Practice; Health education; Impairment; Instruction; Internet; Knowledge; Learning; Libraries; Link; Methods; Modeling; Nonverbal Communication; Online Systems; Outcome; Parents; Persons; Phase; Pilot Projects; Privatization; Production; Psychological reinforcement; Public Health; Randomized, Controlled Trials; Recommendation; Reporting; Research; Resources; Retrieval; Safety; Schools; Sex Behavior; Sexual Development; Sexual Health; Sexual abuse; Sexuality; Site; Small Business Innovation Research Grant; Social Interaction; Specific qualifier value; Stereotyped Behavior; Theory of Change; Time; Training; Uncertainty; Unwanted pregnancy; Video Recording; Visual; Youth; adolescent with autism spectrum disorder; autism spectrum disorder; autistic children; behavior change; design; education resources; evidence base; health communication; improved; individuals with autism spectrum disorder; innovation; interest; learning community; mobile application; nervous system disorder; online community; peer; prevent; randomized, controlled study; repetitive behavior; sex; sexual relationship; sexual risk behavior; skills; skills training; social; social communication; social situation; sound; technology development; unintended pregnancy; verbal; web site

ABSTRACT SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder Adolescents with Autism Spectrum Disorder (ASD) face a range of impairments in social interaction and communication settings, including those involved with sexual communication and behavior. Like their neurotypical peers, adolescents with ASD need comprehensive sexual education to learn and practice healthy sexual development and relationships, and to prevent negative sexual outcomes such as unwanted pregnancy, STIs, sexual abuse, and inappropriate sexual behaviors. Unfortunately, many adolescents with ASD are engaging in sexual activities and behaviors with little or no sexual education until a crisis occurs. Targeted, evidence-based sexual education resources for youth with ASD are limited and not routinely offered in schools. While experts recommend that all parents serve as the primary sex educators for their children, parents of adolescents with ASD face additional, complex challenges. These include uncertainties about how and when to communicate about sex, fears of inciting inappropriate behavior, and worries about their child’s psychosexual functioning, such as limited awareness of public and personal boundaries. In addition, parents are providing less sexual health education, with limited topics, and at a later age than is provided to neurotypical youth. To address these issues and provide support to parents, this Phase II SBIR project will complete development of and evaluate a highly focused Microskills video library titled SkillTalk ASD. The resource will build and support the skills that parents of ASD youth need to offer sexual education to their children. This mobile friendly site and accompanying mobile apps will provide video modeling of critical parent Microskills for teaching sexual education to youth with ASD in a way that is engaging, instructionally sound, and encourages repeat and continued use. When complete, the site will include approximately 350 video clips, grouped into skill sets that visually demonstrate a Microskill in 30–120 seconds. In addition, the resource includes companion Making Connections youth videos offering visual modeling of social/sexual communication scenarios to help facilitate parent discussion, and to offer youth with ASD the ability to watch multiple times for re-enforcement of appropriate behavioral approaches in these complicated social situations. With ongoing input and guidance from a team of ASD expert advisors, including parents of and youth with ASD, the project will 1) develop the content for and produce approximately 350 Microskills within 25 skill sets and 60+ Making Connection videos; 2) complete development of the SkillTalk ASD platform with forums and search/retrieval; 3) develop mobile apps for parents and youth to access SkillTalk content privately and facilitate communication; and 4) conduct a randomized controlled trial with parent/child dyads to assess improvements in parent skills, knowledge, comfort and confidence and youth knowledge, attitudes, and behaviors.

抽象的 Skilltalk：围绕自闭症谱系障碍青年父母的性健康主题的沟通培训 自闭症谱系障碍（ASD）的青少年面临社会互动和 沟通环境，包括与性交和行为有关的沟通设置。喜欢他们 神经型的同龄人，拥有ASD的青少年需要全面的性教育来学习和练习健康 性发展和人际关系，并防止不必要怀孕等负面性结果， 性传播感染，性虐待和不适当的性行为。不幸的是，许多ASD的青少年是 在危机发生之前，从事性活动和行为很少或没有性教育。针对性， 为ASD青年提供的基于证据的性教育资源是有限的，并且在学校没有常规提供。 专家建议所有父母都是孩子的主要性教育者，但 ASD的青少年面临额外的复杂挑战。这些包括关于如何以及何时的不确定性 为了交流性，担心煽动不当行为，并想知道他们的孩子的 心理性功能，例如对公共和个人边界的有限认识。另外，父母 提供的性健康教育较少，主题有限，并且在以后的年龄段 神经型青年。为了解决这些问题并为父母提供支持，该第二阶段SBIR项目将 完整的开发和评估了一个高度重点的Microskills视频库，名为SkillTalk ASD。这 资源将建立和支持ASD青年父母需要为他们的性教育提供性教育的技能 孩子们。这个移动友好的网站和参与的移动应用程序将提供关键父母的视频建模 以一种引人入胜的方式向ASD向青年教性教育的微学， 并鼓励重复并继续使用。完成后，该网站将包含大约350个视频剪辑， 分组为在30-120秒内视觉上显示微观的技能。另外，资源 包括伴侣建立联系青年视频，提供社交/性交流的视觉建模 有助于促进父母讨论的场景，并为年轻人提供多次观看的能力 在这些复杂的社交场合中，重新执行适当的行为方法。正在进行 ASD专家顾问团队的投入和指导，包括ASD的父母和青年，该项目 1）在25个技能和60多次制作中开发内容并生产大约350个微观 连接视频； 2）通过论坛和搜索/检索完成SkillTalk ASD平台的完整开发； 3） 为父母和年轻人开发移动应用程序，以私下访问技能Talk内容并促进沟通； 4）与父母/子二元组进行随机对照试验，以评估父母技能的改进， 知识，舒适和信心以及青年知识，吸引力和行为。