Mobile Media Intervention for Family Caregivers of Veterans with Dementia

对患有痴呆症的退伍军人的家庭护理人员进行移动媒体干预

• 批准号: 9040796
• 负责人: Blake K. Scanlon
• 金额: --
• 依托单位: VETERANS ADMIN PALO ALTO HEALTH CARE SYS
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-01-01 至 2017-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9040796
• 关键词: Address; Aging; Alzheimer' s Disease; Appointment; Award; Behavioral Symptoms; Caregiver Burden; Caregivers; Caring; Clinical; Clinical Research; Clinical Research Associate; Clinical Trials; Cognitive; Data; Data Analyses; Dementia; Dementia caregivers; Development; Devices; Diagnostic; Doctor of Philosophy; Education; Educational Intervention; Educational Materials; Elderly; Environment; Family; Family Caregiver; Foundations; Goals; Home environment; Home visitation; House Call; Impaired cognition; Individual; Intervention; Intervention Studies; Lead; Life Expectancy; Long-Term Care; Longevity; Media Intervention; Medical center; Mental Depression; Mental Health; Methods; Modeling; Nerve Degeneration; Neurobehavioral Manifestations; Neurodegenerative Disorders; Nursing Homes; Outcome; Paper; Patients; Process; Psychiatrist; Psychologist; Quality of life; Randomized; Rehabilitation Research; Rehabilitation therapy; Research; Research Personnel; Resources; Scientist; Social Behavior; Socialization; Tablets; Techniques; Technology; Testing; Time; Translating; Translations; Veterans; base; care burden; care recipients; caregiver interventions; coping; cost; dementia care; depressive symptoms; design; experience; follow-up; improved; innovation; intervention effect; mortality; neurodegenerative dementia; novel; novel strategies; pilot trial; post intervention; professor; public health relevance; rehabilitation management; research and development; rural area; skills; stress symptom; telehealth; therapy design; treatment as usual; urban area

DESCRIPTION (provided by applicant): This is an application for a VA Rehabilitation Research and Development (RR&D) Small Projects in Rehabilitation Research (SPiRE) Award submitted by Blake K. Scanlon, Ph.D. He is currently a Clinical Research Associate (Assistant Professor equivalent) at the Stanford/VA Aging Clinical Research Center with a pending 8/8ths VA appointment subsequent to receipt of a RR&D CDA-2 (Dementia caregiver rehabilitation: enhancing Veteran and family-centered care, 1 IK2 RX001240-01A1; JIT process complete, start date pending). Dr. Scanlon is establishing himself as a clinician-scientist who conducts patient- and family-centered clinical research on dementia and neurodegenerative disease. This award will provide Dr. Scanlon and his team with the resources necessary to develop a novel project aiming to expand the reach of the CDA-2 intervention study by utilizing mobile media devices (i.e., tablets) to serve additional family caregivers of Veterans with dementia in the comfort of their own homes. To accomplish this goal, he has gathered a team that includes three Co-Investigators: Dr. Jerome Yesavage (a geriatric psychiatrist and renowned expert in cognitive and psychiatric functioning across the lifespan); Dr. Joy Taylor (a cognitive psychologist and expert in the trajectory of cognitive decline); and Dr. Lisa Kinoshita (a clinical neuropsychologist with expertise in the assessment and treatment of cognitive and behavioral symptoms in dementia); a Senior Researcher: Dr. Mary Mittelman (an internationally renowned expert in dementia caregiver intervention) and a consultant: Dr. Booil Jo (a biostatistician with expertise in design/analysis of clinical trials, longitudinal data analysis, and missing data analysis). The proposed project studies the effects of an education and skill-building rehabilitation (ESBR) intervention, designed to be low-cost and clinically scalable using mobile media devices, on family caregivers of Veterans with dementia. A total of 40 caregivers caring for a Veteran with dementia will be randomized to mobile media ESBR intervention (ESBR-m; n=20) or to usual care plus paper educational materials (UC; n=20). Intervention effects will be examined at three months post-intervention. The Primary Aim of this study is to establish the feasibility of delivering a group-based intervention to family caregivers of Veterans through mobile media devices (e.g., tablets such as the iPad). Dr. Scanlon will also use advanced statistical techniques (e.g., mixed-effects modeling) to evaluate the impact of the intervention on: quality of life (Specific Aim 1); perceive stress and depressive symptoms (Specific Aim 2); and socialization and engagement in pleasant activities (Specific Aim 3) in caregivers of Veterans with dementia. This award will create an ideal environment where Dr. Scanlon and his team can establish the necessary pilot data to pioneer the development of low-cost, pragmatic and clinically translatable methods for improving rehabilitation and management of neurodegenerative disease and dementia within VHA.

描述（由申请人提供）： 这是Blake K. Scanlon博士提交的VA康复研究与发展（RR＆D）小型康复研究（SPIRE）奖的申请。他目前是斯坦福/VA老化临床研究中心的临床研究助理（助理教授等效），在收到RR＆D CDA-2（痴呆症护理人员康复：增强退伍军人和家庭中心护理，1 IK2 RX001240-01240-011A; JIT）; JONTERTER）的待处理的8/8 va任命。 Scanlon博士正在将自己确立为临床医生，他对痴呆症和神经退行性疾病进行患者和以家庭为中心的临床研究。该奖项将为Scanlon博士及其团队提供开发一项新型项目所需的资源，旨在通过利用移动媒体设备（即平板电脑）为舒适的痴呆症退伍军人的其他家庭护理人员提供服务，以扩大CDA-2干预研究的范围。为了实现这一目标，他召集了一个团队，其中包括三个共同评估者：Jerome Yesavage博士（一位老年精神病医生和著名的认知和精神病运作专家）；乔伊·泰勒（Joy Taylor）博士（认知心理学家和认知衰落轨迹的专家）； Lisa Kinoshita博士（一名在评估和治疗痴呆症的认知和行为症状方面具有专业知识的临床神经心理学家）；一名高级研究员：玛丽·米特尔曼（Mary Mitherman）博士（痴呆症护理人员干预方面的国际知名专家）和顾问：Booil Jo博士（一位生物统计学家（具有临床试验设计/分析专业知识，纵向数据分析和缺少数据分析）的专业知识）。拟议的项目研究了教育和技能建设康复（ESBR）干预措施的影响，该措施旨在使用移动媒体设备，临床上的临床延伸，对痴呆症退伍军人的家庭护理人员。共有40名照顾痴呆症退伍军人的护理人员将被随机分为移动媒体ESBR干预措施（ESBR-M; n = 20）或通常的护理以及纸质教育材料（UC; n = 20）。干预后三个月将检查干预效果。这项研究的主要目的是建立通过移动媒体设备（例如iPad等平板电脑）向退伍军人的家庭护理人员提供基于群体的干预的可行性。 Scanlon博士还将使用先进的统计技术（例如，混合效应建模）来评估干预对生活质量的影响（特定目标1）；感知压力和抑郁症状（特定目标2）；以及在患有痴呆症的退伍军人的护理人员中的社会化和参与宜人的活动（特定目标3）。该奖项将创造一个理想的环境，Scanlon博士及其团队可以建立必要的试点数据，以开发低成本，务实和临床上可翻译的方法，以改善VHA内神经退行性疾病和痴呆症的康复和管理。