Mobile Media Intervention for Family Caregivers of Veterans with Dementia

对患有痴呆症的退伍军人的家庭护理人员进行移动媒体干预

• 批准号: 9040796
• 负责人: Blake K. Scanlon
• 金额: --
• 依托单位: VETERANS ADMIN PALO ALTO HEALTH CARE SYS
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-01-01 至 2017-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9040796
• 关键词: Address; Aging; Alzheimer' s Disease; Appointment; Award; Behavioral Symptoms; Caregiver Burden; Caregivers; Caring; Clinical; Clinical Research; Clinical Research Associate; Clinical Trials; Cognitive; Data; Data Analyses; Dementia; Dementia caregivers; Development; Devices; Diagnostic; Doctor of Philosophy; Education; Educational Intervention; Educational Materials; Elderly; Environment; Family; Family Caregiver; Foundations; Goals; Home environment; Home visitation; House Call; Impaired cognition; Individual; Intervention; Intervention Studies; Lead; Life Expectancy; Long-Term Care; Longevity; Media Intervention; Medical center; Mental Depression; Mental Health; Methods; Modeling; Nerve Degeneration; Neurobehavioral Manifestations; Neurodegenerative Disorders; Nursing Homes; Outcome; Paper; Patients; Process; Psychiatrist; Psychologist; Quality of life; Randomized; Rehabilitation Research; Rehabilitation therapy; Research; Research Personnel; Resources; Scientist; Social Behavior; Socialization; Tablets; Techniques; Technology; Testing; Time; Translating; Translations; Veterans; base; care burden; care recipients; caregiver interventions; coping; cost; dementia care; depressive symptoms; design; experience; follow-up; improved; innovation; intervention effect; mortality; neurodegenerative dementia; novel; novel strategies; pilot trial; post intervention; professor; public health relevance; rehabilitation management; research and development; rural area; skills; stress symptom; telehealth; therapy design; treatment as usual; urban area

DESCRIPTION (provided by applicant): This is an application for a VA Rehabilitation Research and Development (RR&D) Small Projects in Rehabilitation Research (SPiRE) Award submitted by Blake K. Scanlon, Ph.D. He is currently a Clinical Research Associate (Assistant Professor equivalent) at the Stanford/VA Aging Clinical Research Center with a pending 8/8ths VA appointment subsequent to receipt of a RR&D CDA-2 (Dementia caregiver rehabilitation: enhancing Veteran and family-centered care, 1 IK2 RX001240-01A1; JIT process complete, start date pending). Dr. Scanlon is establishing himself as a clinician-scientist who conducts patient- and family-centered clinical research on dementia and neurodegenerative disease. This award will provide Dr. Scanlon and his team with the resources necessary to develop a novel project aiming to expand the reach of the CDA-2 intervention study by utilizing mobile media devices (i.e., tablets) to serve additional family caregivers of Veterans with dementia in the comfort of their own homes. To accomplish this goal, he has gathered a team that includes three Co-Investigators: Dr. Jerome Yesavage (a geriatric psychiatrist and renowned expert in cognitive and psychiatric functioning across the lifespan); Dr. Joy Taylor (a cognitive psychologist and expert in the trajectory of cognitive decline); and Dr. Lisa Kinoshita (a clinical neuropsychologist with expertise in the assessment and treatment of cognitive and behavioral symptoms in dementia); a Senior Researcher: Dr. Mary Mittelman (an internationally renowned expert in dementia caregiver intervention) and a consultant: Dr. Booil Jo (a biostatistician with expertise in design/analysis of clinical trials, longitudinal data analysis, and missing data analysis). The proposed project studies the effects of an education and skill-building rehabilitation (ESBR) intervention, designed to be low-cost and clinically scalable using mobile media devices, on family caregivers of Veterans with dementia. A total of 40 caregivers caring for a Veteran with dementia will be randomized to mobile media ESBR intervention (ESBR-m; n=20) or to usual care plus paper educational materials (UC; n=20). Intervention effects will be examined at three months post-intervention. The Primary Aim of this study is to establish the feasibility of delivering a group-based intervention to family caregivers of Veterans through mobile media devices (e.g., tablets such as the iPad). Dr. Scanlon will also use advanced statistical techniques (e.g., mixed-effects modeling) to evaluate the impact of the intervention on: quality of life (Specific Aim 1); perceive stress and depressive symptoms (Specific Aim 2); and socialization and engagement in pleasant activities (Specific Aim 3) in caregivers of Veterans with dementia. This award will create an ideal environment where Dr. Scanlon and his team can establish the necessary pilot data to pioneer the development of low-cost, pragmatic and clinically translatable methods for improving rehabilitation and management of neurodegenerative disease and dementia within VHA.

描述（由申请人提供）： 这是 Blake K. Scanlon 博士提交的 VA 康复研究与开发 (RR&D) 小型康复研究项目 (SPiRE) 奖申请。他目前是斯坦福大学/退伍军人管理局老龄化临床研究中心的临床研究员（相当于助理教授），在收到 RR&D CDA-2（痴呆症护理人员康复：加强退伍军人和以家庭为中心的护理）后，正在等待 8/8 退伍军人事务部的任命, 1 IK2 RX001240-01A1；JIT 流程完成，开始日期待定）。斯坎伦博士正在将自己打造成一名临床医生科学家，从事以患者和家庭为中心的痴呆症和神经退行性疾病临床研究。该奖项将为 Scanlon 博士和他的团队提供开发一个新项目所需的资源，该项目旨在通过利用移动媒体设备（即平板电脑）为患有痴呆症的退伍军人的其他家庭护理人员提供服务，扩大 CDA-2 干预研究的范围在自己舒适的家中。为了实现这一目标，他组建了一个由三名联合研究员组成的团队：Jerome Yesavage 博士（一位老年精神病学家，一生中认知和精神功能方面的著名专家）；乔伊·泰勒博士（认知心理学家、认知衰退轨迹专家）； Lisa Kinoshita 博士（临床神经心理学家，在评估和治疗痴呆症认知和行为症状方面具有专业知识）；高级研究员：Mary Mittelman 博士（国际知名的痴呆症护理人员干预专家）和顾问：Booil Jo 博士（生物统计学家，擅长临床试验设计/分析、纵向数据分析和缺失数据分析）。拟议的项目研究教育和技能建设康复 (ESBR) 干预措施对患有痴呆症的退伍军人的家庭护理人员的影响，该干预措施旨在利用移动媒体设备实现低成本且可在临床上扩展。总共 40 名照顾患有痴呆症的退伍军人的护理人员将被随机分配接受移动媒体 ESBR 干预（ESBR-m；n=20）或接受常规护理加纸质教育材料（UC；n=20）。干预效果将在干预后三个月进行检查。本研究的主要目的是确定通过移动媒体设备（例如 iPad 等平板电脑）向退伍军人家庭护理人员提供基于团体的干预的可行性。 Scanlon 博士还将使用先进的统计技术（例如混合效应模型）来评估干预措施对以下方面的影响： 生活质量（具体目标 1）；感知压力和抑郁症状（具体目标 2）；患有痴呆症的退伍军人的护理人员进行社交和参与愉快的活动（具体目标 3）。该奖项将创造一个理想的环境，斯坎伦博士和他的团队可以在其中建立必要的试点数据，以开拓低成本、实用且可临床转化的方法的开发，以改善 VHA 内神经退行性疾病和痴呆症的康复和管理。