Cancer

癌症

• 批准号: 7646505
• 负责人: SCOTT RAMSEY
• 金额: --
• 依托单位: UNIVERSITY OF COLORADO DENVER
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-06-24 至 2012-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7646505
• 关键词: ARHGEF5 gene; Alaska Native; American Indians; Area; Cancer Control; Cancer Patient; Caregivers; Caring; Clinic; Clinical; Data; Databases; Diagnosis; Enrollment; Fred Hutchinson Cancer Research Center; Goals; Health; Insurance Coverage; Interview; Link; Malignant Neoplasms; Medicaid; Native Americans; Native-Born; Newly Diagnosed; Numbers; Patients; Persons; Procedures; Recording of previous events; Records; Resources; Services; Surveys; United States Indian Health Service; Universities; Update; Washington; Work; cancer care; cancer diagnosis; cancer therapy; follow-up; neoplasm registry; programs; tribal health

Many American Indians and Alaska Natives (AI/ANs) with cancer are insured through the Medicaid program. In our previous Project EXPORT study of AI/AN Medicaid enrollees with cancer (5 P60 MD00508), we detected an extraordinary number of newly diagnosed cancer patients who disenrolled from the Medicaid program within months of diagnosis. In this study, we propose to survey AI/ANs diagnosed with cancer to determine their insurance status, enrollment and disenrollment history, and whether disenrollment influenced their access to cancer care services. To create this resource, we will update our ongoing link of patient records from the Indian Health Service, the Washington State Cancer Registry, and Medicaid. Our Specific Aims are to: 1) Update our comprehensive sociodemographic, clinical, and claims database for AI/AN cancer patients through linking -- at the patient level ¿ records from the Washington State Cancer Registry, clinic enrollment data from Indian Health Service and tribal clinics, and Medicaid enrollment and claims records. This database will encompass all AI/AN patients with a documented diagnosis of cancer from 1997 to 2004, with follow-up claims through 2006. 2) Conduct in-person interviews with tribal health workers, AI/AN cancer patients and caregivers, with the goal of identifying: a. Reasons why AI/ANs disenroll from Medicaid after they are diagnosed with cancer; and b. Whether disenrollment results in delays in use or nonuse of recommended cancer therapies and follow-up procedures. To better understand the impact of disenrollment on care and follow-up, we will interview AI/ANs who did and did not disenroll from Medicaid following their cancer diagnosis. 3) For AI/AN patients with cancer who are enrolled in the Medicaid program, determine whether disenrollment within 2 years of diagnosis is associated with poorer cancer-specific survival. Our study is greatly enhanced by the close working partnerships among the Fred Hutchinson Cancer Research Center, the University of Washington's Native People for Cancer Control, the Washington State Medicaid program, and the Northwest Portland Area Indian Health Board.

许多美国印第安人和阿拉斯加土著人（AI/ANS）都通过医疗补助提供了癌症 程序。在我们以前的项目出口研究中，AI/A的医疗补助正在癌症（5 p60 MD00508）中， 我们检测到了许多新诊断的癌症患者，他们从医疗补助 诊断几个月内计划。在这项研究中，我们建议调查被诊断为癌症的AI/ANS 确定他们的保险状况，入学和剥夺历史记录，以及是否受到影响 他们获得癌症护理服务。为了创建此资源，我们将更新患者正在进行的链接 印度卫生服务局，华盛顿州癌症注册表和医疗补助的记录。 我们的具体目的是： 1）更新我们的全面社会人口统计学，临床和索赔数据库 通过联系的患者 - 在患者级别»华盛顿州癌症的记录 印度卫生服务和部落诊所的诊所注册数据注册表，以及医疗补助 注册和索赔记录。该数据库将涵盖所有具有AI/A的患者 从1997年到2004年，记录了癌症的诊断，直到2006年都有随访主张。 2）对部落卫生工作者，AI/A/A癌症患者和护理人员进行面对面访谈， 目的是确定： 一个。原因是AI/ANS被诊断出患有癌症后对医疗补助的剥夺；和 b。剥夺是会导致使用延迟还是不使用推荐的癌症疗法 和后续程序。 为了更好地理解剥夺对护理和随访的影响，我们将采访AI/ANS 并且在其癌症诊断后没有取消医疗补助。 3）对于参加医疗补助计划的AI/A AI/A 诊断后的2年内脱落与癌症特异性较差的生存有关。 弗雷德·哈钦森癌（Fred Hutchinson Cancer）之间的紧密合作伙伴关系大大提高了我们的研究 华盛顿大学的癌症控制人研究中心，华盛顿州 医疗补助计划和西北波特兰地区印度卫生委员会。