Utah Medical Home Web Site Project

犹他州医疗之家网站项目

• 批准号: 7209018
• 负责人: Ernest Charles Norlin
• 金额: $ 14.88万
• 依托单位: UNIVERSITY OF UTAH
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-03-15 至 2009-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7209018
• 关键词: Affect; Architecture; Caring; Child; Child Care; Childhood; Chronic Disease; Clinical; Computerized Medical Record; Condition; Data; Databases; Development; Devices; Diagnosis; Electronic Health Record; Evaluation; Extensible Markup Language; Family; Family Physicians; GDF15 gene; Goals; Hand; Health system; Healthcare; Home environment; Incentives; Information Resources; Information Systems; Internet; Knowledge; Literature; Locales; Maintenance; Medical; Modeling; Numbers; Online Systems; PLAB Protein; Parents; Patients; Peer Review; Personal Computers; Physicians; Primary Care Physician; Process; Provider; Public Health; Publishing; Research Infrastructure; Resources; Semantics; Services; Site; State Interests; Structure; System; Testing; Time; Training; Unified Medical Language System; United States; Utah; Vocabulary; Work; base; data structure; health care delivery; improved; indexing; pediatrician; programs; tool; usability; Affect; Architecture; Caring; Child; Child Care; Childhood; Chronic Disease; Clinical; Computerized Medical Record; Condition; Data; Databases; Development; Devices; Diagnosis; Electronic Health Record; Evaluation; Extensible Markup Language; Family; Family Physicians; GDF15 gene; Goals; Hand; Health system; Healthcare; Home environment; Incentives; Information Resources; Information Systems; Internet; Knowledge; Literature; Locales; Maintenance; Medical; Modeling; Numbers; Online Systems; PLAB Protein; Parents; Patients; Peer Review; Personal Computers; Physicians; Primary Care Physician; Process; Provider; Public Health; Publishing; Research Infrastructure; Resources; Semantics; Services; Site; State Interests; Structure; System; Testing; Time; Training; Unified Medical Language System; United States; Utah; Vocabulary; Work; base; data structure; health care delivery; improved; indexing; pediatrician; programs; tool; usability

DESCRIPTION (provided by applicant): Though most chronic diseases/conditions in childhood are very uncommon (<1/3000), together they affect about 13% of children in the United States. A busy pediatrician or family physician will care for many such patients, though few, if any, of her/his other patients will share the same diagnoses. Providing optimal care for Children with Special Health Care Needs (CSHCN) is challenging, requiring up-to-date knowledge, ready access to specialized health care resources, and considerable time to manage and coordinate care. Families and educators are also key providers of care and CSHCN will benefit when all the providers are enabled with information and when they work together as partners. These are key components of a "Medical Home". This project seeks to support primary care physicians, as well as families and educators, in meeting these challenges by providing a Web-based information and resource access system. The Utah Collaborative Medical Home Project (UCMHP) has developed the MedHome Portal (http://www.medhomeportal.org) to accomplish this goal. This proposal will further development of the site's infrastructure, enhance its utility and usability, and its offerings and its impact through the following specific aims: 1. Convert to an XML data structure and complete authoring and content management tools, integrating UMLS indexing. Use of XML will provide a robust and flexible structure for data and documents. UMLS indexing will allow optimal searching and navigation. Site and content management processes/tools will enable rigorous development and review of content and maintenance of current information on services. 2. Expand and optimize utility and usability of the MedHome Portal: Usability testing will drive ongoing improvement in presentation, navigation, and personalized features. Accessibility will be optimized. 3. Work with partners to expand content and impact of the Portal. Regional and national partnerships will expand content development and peer review, offer MedHome Portal resources through clinical information systems, and enable other locales to access customized versions of the Portal with local service listings. Promotion and training will be integrated for physicians, families, educators, and others. With increased registered user base, enhanced evaluation will be possible. Health system and public health partnerships will support long-term sustainability.

描述（由申请人提供）：尽管儿童时期的大多数慢性疾病/状况都很少见（<1/3000），但它们共同影响了美国约13％的儿童。繁忙的儿科医生或家庭医生会照顾许多这样的患者，尽管她/他的其他患者中的很少有（如果有的话）可以共享相同的诊断。为有特殊医疗保健需求（CSHCN）的儿童提供最佳护理具有挑战性，需要最新的知识，准备获得专门的医疗保健资源以及大量时间来管理和协调护理。家庭和教育者也是护理的关键提供者，当所有提供者都可以通过信息以及作为合作伙伴一起工作时，CSHCN将受益。这些是“医疗之家”的关键组成部分。该项目旨在通过提供基于网络的信息和资源访问系统来支持初级保健医生以及家庭和教育者，以应对这些挑战。犹他州的合作 Medical Home Project（UCMHP）开发了Medhome门户（http://www.medhomeportal.org），以实现这一目标。该提案将进一步开发该网站的基础设施，增强其实用性和可用性及其产品及其通过以下特定目的的影响及其影响： 1。转换为XML数据结构以及完整的创作和内容管理工具，集成 UMLS索引。 XML的使用将为数据和文档提供强大而灵活的结构。 umls 索引将允许最佳搜索和导航。网站和内容管理流程/工具 将对内容进行严格的开发和审查以及当前信息的维护 服务。 2。扩展和优化Medhome门户网站的实用性和可用性：可用性测试将推动正在进行 改进演示文稿，导航和个性化功能。可访问性将被优化。 3。与合作伙伴合作以扩大门户网站的内容和影响。区域和国家合作伙伴关系将扩大内容开发和同行评审，通过临床提供Medhome门户资源 信息系统，并使其他地区能够使用本地访问门户网站的自定义版本 服务清单。 晋升和培训将集成为医师，家庭，教育工作者和其他人的促进和培训。和 注册用户群增加，可以增强评估。卫生系统和公共卫生 伙伴关系将支持长期的可持续性。