Hopkins Center to Promote resilience in persons and families living with multiple chronic conditions (the PROMOTE Center)

霍普金斯促进患有多种慢性病的个人和家庭的复原力中心（PROMOTE 中心）

基本信息

批准号：
9768552
负责人：
Sarah L Szanton
金额：
$ 55.72万
依托单位：
JOHNS HOPKINS UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2018
资助国家：
美国
起止时间：
2018-08-22 至 2023-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9768552
关键词：
Address Adoption Adult Affective Age Area Attention Behavior Therapy Biological Markers Businesses Caregivers Caring Cells Cessation of life Chronic Communication Communities Community Health Systems Consultations Development Discipline of Nursing Elderly Environment Evaluation Family Family Caregiver Fatigue Fostering Generations Genomics Goals Habits Health Healthcare Home environment Individual Infrastructure Insurance Interdisciplinary Study Intervention Intervention Studies Knowledge Lead Life Logic Measures Mentorship Methodology Methods Modeling Nurses Pain Participant Persons Phase Physiological Physiological Processes Pilot Projects Policies Population Positioning Attribute Process Provider Quality of life Research Research Personnel Resource Development Resources Risk Science Scientist Societies Sweat Testing Translations United States Work base biobehavior career contextual factors cytokine design disability evidence base experience frailty health care service utilization improved informal caregiver innovation member multidisciplinary multiple chronic conditions preference resilience skills social health determinants theories therapy development uptake

项目摘要

Developing feasible, effective and scalable interventions to improve health among people with multiple chronic conditions is urgent. However, research gaps hinder intervention development. Most interventions do not consider co-occurring functional limitations, family caregivers' perspectives or contextual factors that define social determinants of health. Moreover, interventions commonly focus on deficits rather than strengths. These limitations are compounded by lack of communication among practitioners and people experiencing multiple chronic conditions about their goals, values, and preferences. The proposed Hopkins Center to Promote resilience in persons and families living with multiple chronic conditions (the PROMOTE Center) is poised to address these gaps. The PROMOTE Center will leverage a unique combination of interdisciplinary expertise in 1) behavioral intervention research 2) research and statistical methodology and 3) physiological processes including cytokines found in sweat. Early, mid-career and senior researchers, persons and families experiencing multiple chronic conditions, and key translational stakeholders will work together to advance the science of improving health among those with multiple chronic conditions using our innovative ecological resilience framework. This framework conceptualizes resilience as a life-long process impacted by cumulative interaction of multiple inter-related factors, such as society, community, and family, individual, physiologic and genomic factors. The PROMOTE Center will advance science to improve health and care of adults with multiple chronic conditions by providing expertise, mentorship and resources for the development, implementation and evaluation of theory-driven interdisciplinary research through three Aims. Aim 1: Establish a community-informed, sustainable infrastructure with dedicated resources to advance interdisciplinary nursing science that improves the health of vulnerable adults with multiple chronic conditions and their family caregivers: Aim 2: Foster a new generation of nursing scholars with skills to lead interdisciplinary research that improves the resilience of adults with multiple chronic conditions. Aim 3: Leverage unique environmental strengths to enhance dissemination and translation of evidence-based multiple chronic condition interventions through established partnerships with key stakeholders. Key innovations of the PROMOTE Center include: 1) Use of Society to Cells Resilience Framework that supports focus on health phases in which people are most likely to be open to new information and habits; 2) Integration of exploratory aims in pilot studies measuring bio- markers of resilience with non-invasive sweat measures developed at NINR; and 3) User-centered strengths- based co-design approaches at each phase of pilot development leading to enhanced participant uptake and higher likelihood of sustainability and translation to other settings.

制定可行、有效和可扩展的干预措施，以改善多种慢性病患者的健康条件紧急。然而，研究差距阻碍了干预措施的发展。大多数干预措施并不考虑同时发生的功能限制、家庭照顾者的观点或定义的背景因素健康的社会决定因素。此外，干预措施通常侧重于缺陷而不是优势。这些由于从业者和经历多种疾病的人们之间缺乏沟通，这些限制更加复杂化。关于他们的目标、价值观和偏好的慢性病。拟议的霍普金斯中心促进患有多种慢性病的个人和家庭的复原力（PROMOTE 中心）已做好准备来解决这些差距。 PROMOTE 中心将利用跨学科专业知识的独特组合 1) 行为干预研究 2) 研究和统计方法 3) 生理过程包括汗液中发现的细胞因子。早期、中期和高级研究人员、个人和家庭经历多种慢性病和主要转化利益相关者将共同努力推进慢性病的科学发展利用我们创新的生态恢复力改善患有多种慢性病的人的健康框架。该框架将复原力概念化为受累积互动影响的终生过程社会、社区、家庭、个人、生理和基因组等多种相互关联的因素因素。 PROMOTE 中心将推进科学进步，以改善患有多种慢性病的成年人的健康和护理通过为开发、实施和评估提供专业知识、指导和资源来创造条件通过三个目标进行理论驱动的跨学科研究。目标 1：建立一个社区知情、具有专用资源的可持续基础设施，以推进跨学科护理科学，从而改善患有多种慢性病的弱势成年人及其家庭照顾者的健康：目标 2：培养新的培养具有领导跨学科研究技能的护理学者，以提高成年人的适应能力患有多种慢性病。目标3：利用独特的环境优势加强传播和通过与关键人物建立的伙伴关系转化基于证据的多种慢性病干预措施利益相关者。 PROMOTE 中心的主要创新包括： 1) 使用社会与细胞弹性框架来支持关注人们最常处于的健康阶段可能乐于接受新信息和新习惯； 2) 将探索性目标纳入测量生物的试点研究中 NINR 开发的非侵入性出汗测量方法的恢复力标记； 3) 以用户为中心的优势- 试点开发每个阶段基于协同设计方法，从而提高参与者的接受度和可持续性和转化为其他环境的可能性更高。