Problem Solving Skills Training for Parent Caregivers of Youth with Chronic Pain

慢性疼痛青少年家长照顾者解决问题的技能培训

• 批准号: 8323329
• 负责人: Tonya M Palermo
• 金额: $ 21.68万
• 依托单位: SEATTLE CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-08-25 至 2014-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8323329
• 关键词: Adolescent; Affect; Aftercare; Anxiety; Caregivers; Caring; Child; Childhood; Complement; Control Groups; Coping Skills; Development; Distress; Educational Intervention; Emotional; Emotional Stress; Enrollment; Environment; Family; Goals; Health; Individual; Intervention; Knowledge; Literature; Malignant Neoplasms; Measurable; Measures; Medical; Mental Depression; Mental disorders; Methods; Modification; Mothers; Outcome Study; Pain; Pain Clinics; Pain management; Parenting behavior; Parents; Phase; Play; Population; Problem Solving; Quality of life; Randomized; Randomized Controlled Trials; Recommendation; Recruitment Activity; Reporting; Research; Role; Sampling; Series; Social Functioning; Stress; Testing; Traumatic Brain Injury; Visit; Work; Youth; chronic pain; compliance behavior; coping; depressive symptoms; design; disability; effective therapy; efficacy trial; evidence base; experience; follow-up; high risk; innovation; medical specialties; parental role; programs; psychologic; psychological distress; response; satisfaction; secondary outcome; skills; skills training; social; standard care; success; therapy design; therapy development; treatment duration

DESCRIPTION (provided by applicant): Chronic pain affects 25-40% of children and adolescents, and results in a measurable decline in children's overall quality of life. Parents not only play a significant role in how their children cope with chronic pain but they also can experience their own widespread social, relational, emotional and financial impact. In particular, parents of youth with chronic pain report increased role stress, increased depressive symptoms, and reduced social functioning. Regardless of the reason for increased distress, multiple studies have found that parental psychological distress is associated with poorer child adjustment. Therefore, there is a critical need to consider methods of reducing parental distress in order to more effectively manage children's chronic pain and disability. To date, no intervention has been developed specifically to treat parents in the context of their child's chronic pain, despite need, and success in other evidence-based pain treatments in youth. The proposed project is designed to evaluate problem-solving skills training (PSST), an intervention proven effective for reducing parental distress in other caregiver populations of individuals with medical conditions. Our aims are to evaluate the feasibility and acceptability of PSST as an intervention in parent caregivers of youth with chronic pain, and to conduct a preliminary efficacy trial of PSST in parents of youth with chronic pain. In this application, we propose first testing the intervention with 5 parent-child dyads in a pilot phase and then carrying out a randomized controlled trial of PSST in 60 parent caregivers of youth (10-17 years) with chronic pain recruited from two pain clinics. All children will be receiving specialty care for chronic pain. Parents randomized to the PSST intervention will, in addition, receive 8 individual sessions of problem-solving skills training over an 8-week treatment period while parents in the Standard Care control group will continue with prescribed treatments and recommendations for chronic pain management from the pain clinics. The primary study outcomes are parental depression and anxiety, parenting stress, and problem-solving skills and child physical and emotional functioning measured at pre-treatment, immediately post-treatment, and at 3-month follow-up. Secondary outcomes include parental impact of chronic pain and treatment satisfaction and acceptability. We propose the first ever intervention designed for, and delivered directly to, parental caregivers of youth with chronic pain. Findings will increase understanding of the interrelationships among parental and child functioning, and specifically will provide knowledge of how to augment effectively child and parent focused interventions. This innovation in treatment development will significantly advance psychological therapies for pediatric pain management, and ultimately may enhance quality of life in the substantial population of youth and their families affected by chronic pain.

描述（由申请人提供）：慢性疼痛影响 25-40% 的儿童和青少年，并导致儿童整体生活质量明显下降。父母不仅在孩子如何应对慢性疼痛方面发挥着重要作用，而且他们也能体验到自己广泛的社会、关系、情感和经济影响。特别是，患有慢性疼痛的青少年的父母报告说角色压力增加，抑郁症状增加，社会功能下降。无论痛苦增加的原因是什么，多项研究发现，父母的心理困扰与孩子的适应能力较差有关。因此，迫切需要考虑减少父母痛苦的方法，以便更有效地管理儿童的慢性疼痛和残疾。迄今为止，尽管有需要，并且在其他基于证据的青少年疼痛治疗中取得了成功，但还没有专门针对孩子慢性疼痛的父母制定干预措施。拟议的项目旨在评估解决问题的技能培训（PSST），这种干预措施被证明可以有效减少其他患有疾病的照顾者群体的父母痛苦。我们的目的是评估 PSST 作为慢性疼痛青少年父母照顾者干预措施的可行性和可接受性，并在慢性疼痛青少年父母中进行 PSST 的初步疗效试验。在此应用中，我们建议首先在试点阶段测试 5 名亲子二人组的干预措施，然后对从两个疼痛诊所招募的 60 名患有慢性疼痛的青少年（10-17 岁）的家长进行 PSST 随机对照试验。所有儿童都将接受慢性疼痛的特殊护理。此外，随机接受 PSST 干预的家长将在 8 周的治疗期内接受 8 次单独的问题解决技能培训，而标准护理对照组的家长将继续接受处方治疗和针对慢性疼痛管理的建议诊所。主要研究结果是在治疗前、治疗后以及 3 个月随访时测量的父母抑郁和焦虑、养育压力、解决问题的能力以及儿童的身体和情绪功能。次要结果包括慢性疼痛对父母的影响以及治疗满意度和可接受性。我们提出了有史以来第一个针对患有慢性疼痛的青少年的父母照顾者而设计并直接提供给他们的干预措施。研究结果将增进对父母和儿童功能之间相互关系的理解，特别是提供如何有效增强以儿童和父母为中心的干预措施的知识。这种治疗开发的创新将显着推进儿科疼痛管理的心理治疗，并最终可能提高大量受慢性疼痛影响的青少年及其家庭的生活质量。

项目成果

Adaptation of Problem-Solving Skills Training (PSST) for Parent Caregivers of Youth with Chronic Pain.

针对患有慢性疼痛的青少年的家长照顾者进行问题解决技能培训 (PSST) 的调整。

• 发表时间: 2014-09
• 作者: Palermo, Tonya M;Law, Emily F;Essner, Bonnie;Jessen;Eccleston, Christopher
• 通讯作者: Eccleston, Christopher