An Internet-Based Diary Study of Women with Migraines

基于互联网的偏头痛女性日记研究

• 批准号: 7142809
• 负责人: Moloney F MOLONEY
• 金额: $ 20.64万
• 依托单位: GEORGIA STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-08-07 至 2008-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7142809
• 关键词: Internet; clinical research; experience; pain; perception; self care

DESCRIPTION (provided by applicant): The primary purpose of this prospective, descriptive mixed-method study is to examine the feasibility and acceptability of using the evolving technology of the Internet to implement an Internet-based daily migraine headache diary which can be used in a subsequent study as an innovative intervention to increase self monitoring of triggers and prodromes, and enable the diary user to implement self-care interventions that will decrease the frequency and severity of migraines. Specific aims are: 1) To explore the feasibility and acceptability of using an Internet-based approach to obtain acceptable completion rates (minimum average of 50% days) of daily diary data over 4 months; and 2) To pilot an Internet-based daily diary to describe the accuracy with which women identify arid monitor their prodromal symptoms and triggers, predict their headaches, and use appropriate self-care measures. This proposal addresses PA-03-152, Biobehavioral Pain Research, to examine the pain experience of migraine headache as a first step toward the longterm goal of developing specific, targeted biobehavioral interventions enabling women to manage or prevent migraine pain. One hundred women will be recruited to complete an online health history questionnaire, a 4-month daily Internet-based diary that will collect information about triggers and prodromal symptoms, perceptions about likelihood of migraine on subsequent days, and use of self-care measures. Follow-up interviews after the fourth month of data collection will use quantitative and qualitative questions to elicit changes in participants' perceptions of triggers and migraines, reported changes in self-care measures as a result of the diary experience, and perceptions regarding use of the Internet-based format. Descriptive statistics, including time series analysis methods, will be used to compare triggers and prodromal patterns, recorded in the diary, against participants' initial perceptions about their individual triggers and prodromal symptoms, and against their perceived triggers and symptoms at the end of the study. Interpretive qualitative methods will also be used to analyze qualitative data. This research is significant for public health because migraines are a major cause of diminished quality of life, particularly for women, and are one of the top reasons for visits to primary care providers. Only about half of migraine sufferers are diagnosed and adequately treated, and many migraines can be prevented or relieved with early diagnosis and treatment.

描述（由申请人提供）：这项前瞻性，描述性混合方法研究的主要目的是检查使用互联网不断发展的技术实施基于Internet的每日偏头痛日记的可行性和可接受性，随后的研究可以用作创新的干预措施，以增加触发器的自我监测和启用自我疾病的自我监控，并启用频率，并启用脉络性使用，并启用脉络性使用，并启用脉络性使用率，并实现疾病的自我启动，并启用了疾病的自我调查，并实现疾病偏头痛。具体目的是：1）探索使用基于互联网的方法在4个月内使用基于互联网的方法（最低平均50％天数）的可行性和可接受性； 2）试用基于互联网的日记，以描述女性识别的精确性，以使妇女识别出的疾病症状和触发器，预测自己的头痛并采取适当的自我保健措施。该提案介绍了PA-03-152，即生物行为疼痛研究，以研究偏头痛的疼痛经历，这是朝着发展特定的，有针对性的生物行为干预措施的长期目标的第一步，使妇女能够管理或预防偏头痛。将招募一百名妇女来完成在线健康史问卷调查表，这是一份为期4个月的基于Internet的日记，该日记将收集有关触发因素和前驱症状的信息，随后几天对偏头痛的可能性以及使用自我保健措施的看法。数据收集第四个月后的后续访谈将使用定量和定性问题引起参与者对触发因素和偏头痛的看法的变化，并报告了由于日记经验而导致的自我保健措施的变化，以及对基于Internet形式的使用的看法。描述性统计数据（包括时间序列分析方法）将用于比较日记中记录的触发因素和前驱模式，以与参与者对其个体触发器和前驱症状的最初看法，以及在研究结束时与他们的感知触发因素和症状。解释性定性方法也将用于分析定性数据。这项研究对公共卫生而言至关重要，因为偏头痛是生活质量降低的主要原因，尤其是女性，也是访问初级保健提供者的主要原因之一。只有大约一半的偏头痛患者被诊断出来并得到了充分的治疗，并且可以通过早期诊断和治疗来预防或缓解许多偏头痛。