INFORMATION NEEDS OF AFRICAN AMERICAN CANCER PATIENTS

非裔美国癌症患者的信息需求

基本信息

批准号：
6452966
负责人：
Alicia K Matthews
金额：
$ 3.56万
依托单位：
UNIVERSITY OF CHICAGO
依托单位国家：
美国
项目类别：
财政年份：
1999
资助国家：
美国
起止时间：
1999-08-01 至 2002-07-31
项目状态：
已结题

项目摘要

A study is proposed to explore information seeking, patient- provider communication, participation in treatment decision making, and emotional adjustment of a random sample of 250 African American and 250 White cancer patients and their families. Subjects will be identified from hospital tumor registries. The study partially replicates and expands a previous study exploring information seeking and treatment participation of White cancer patients (Manfredi, Czaja, Price, Ruis, and Jansizewski, 1993a). The proposed study expands previous work by exploring racial, economic, and psychosocial predictors of information seeking. African American and White samples will be matched on patient characteristics: age, gender, cancer site (breast, colon, prostate), time since diagnosis, and size of hospital where the patient was first diagnosed or treated. Data will be collected through telephone interviews of the patients to determine: 1) the information needs and information-seeking activities of the patients and their families at the time of diagnosis and sine then; 2) patient-provider communication about care decisions; 3) participation in treatment decision making; 4) the extent to which the three items above are influenced by sociopsychological characteristics of the patient, including SES (education and type of employment), type of insurance coverage, disease related factors, and coping style and resources; 5) whether the patient sought and received a second opinion or consultation or was offered or participated in a clinical trial; and 6) the patient's adjustment to the disease. The specific goals of the study are to: 1. To revise, expand and pretest the questionnaire used in the previous study of information seeking with White cancer patients (Manfredi, et al., 1993). Expansion will include adding validated psychometric instruments assessing psychosocial factors thought to affect patient information seeking and new items to assess the potential impact of race on variables such a patient-provider communication. 2. To identify and interview a random sample of 250 African American and 250 White cancer patients, stratified by cancer site (breast, prostate, colon-rectum), and matched on months since diagnosis (3-6, 7-10, 11-14), age group (less than or equal to 50, 51-64, greater than or equal to 65), gender, and size of hospital at diagnosis. 3. To analyze the above data. The main focus of the analysis will be to: a) describe the coping styles, patient-provider communication patterns, informational needs, information-seeking activities, participation in treatment decision-making, and emotional adjustment to their disease of African-American cancer patients; b) compare these characteristics with those of White cancer patients; c) explore patterns of interactions among these variables, how they are influenced by demographic and illness characteristics; and how these patterns are affected by race; d) develop a theoretical model that predicts information-seeking, participation in treatment decision making process, and emotional adjustment among individuals facing a diagnosis of cancer, based on predisposing, enabling, and reinforcing socio-psychological factors taking into consideration the effect of demographic and illness variables; and e) assess the potential effect of race and related mediating factors on the above model.

提出了一项研究，以探索信息寻求信息，患者提供者的沟通，参与治疗决策，以及随机调整250名非裔美国人和250名白癌患者及其家人的随机样本。受试者将从医院肿瘤登记处确定。该研究部分复制并扩展了先前的研究，探讨了白癌患者的寻求和治疗参与的信息（Manfredi，Czaja，Price，Ruis和Jansizewski，1993a）。拟议的研究通过探索信息寻求的种族，经济和社会心理预测因素来扩展以前的工作。非裔美国人和白人样本将与患者特征相匹配：年龄，性别，癌症部位（乳腺癌，结肠，前列腺），自诊断以来的时间以及首次诊断或治疗患者的医院大小。数据将通过对患者的电话采访来确定：1）当时诊断和正弦时，患者及其家人的信息需求和信息寻求活动； 2）有关护理决定的患者提供者的沟通； 3）参与治疗决策； 4）上述三个项目受患者社会心理学特征的影响，包括SES（教育和就业类型），保险范围的类型，相关因素以及应对风格和资源； 5）患者是否寻求并收到第二意见或咨询，还是接受或参加临床试验； 6）患者对疾病的调整。该研究的具体目标是：1。修改，扩展和测试调查表中使用的调查表与白色癌症患者的信息寻求信息（Manfredi等，1993）。扩展将包括添加经过验证的心理测量仪器评估被认为会影响患者信息寻求和新项目的心理因素，以评估种族对患者提供沟通等变量的潜在影响。 2。识别和访谈250名非裔美国人和250名白癌患者的随机样本，并通过癌症部位（乳腺，前列腺，结肠结肠）进行分层，并在诊断以来的月份进行匹配（3-6、7-10、11-11- 14），年龄组（小于或等于50、51-64，大于或等于65），诊断时的性别和医院大小。 3。分析上述数据。分析的主要重点是：a）描述应对风格，患者提供的沟通方式，信息需求，寻求信息活动，参与治疗决策以及对非裔美国癌症患者疾病的情感调整; b）将这些特征与白癌患者的特征进行比较； c）探索这些变量之间的相互作用模式，如何受到人口统计学和疾病特征的影响；以及这些模式如何受种族影响； d）开发一个理论模型，以预测寻求治疗决策过程的参与以及面临癌症诊断的个体之间的情绪调整，基于易感性，支持和加强人口统计学和增强社会心理因素的影响。疾病变量； e）评估种族和相关中介因子对上述模型的潜在影响。