Simulation-Based Caregiving Skills Training for Family Members of High Grade Glioma Patients

高级别胶质瘤患者家属的模拟护理技能培训

基本信息

  • 批准号:
    10509910
  • 负责人:
  • 金额:
    $ 20.29万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2022
  • 资助国家:
    美国
  • 起止时间:
    2022-09-01 至 2024-08-31
  • 项目状态:
    已结题

项目摘要

PROJECT SUMMARY/ABSTRACT Patients with brain tumors experience more debilitating sequelae compared to other cancer patients and thus, often dependent on their family members for care and support early on in the disease course. While caregiving- related activities are taxing in general, family caregivers of brain tumor patients face unique challenges related to patient cognitive decline, neurological and motor deficits, and personality changes due to the disease process and treatment. With the typical rapid disease progression and subsequent patient functional decline, caregivers increasingly assist patients with activities of daily living (e.g., bathing, feeding, dressing) as well as coordination of care, symptom and medication management, and decision-making. Essentially, caregivers provide basic nursing care without skill-based training. Moreover, despite clear evidence of high caregiver distress and burden, which may impact their ability to care for the patient, caregivers report that their support needs are often unattended to by multi-disciplinary oncology teams. In fact, the neuro-oncology literature generally lacks evidence-based supportive care interventions for this vulnerable population. To address these critical knowledge gaps, we propose to pilot-test a novel simulation-based caregiving skills intervention to target the unique needs of caregivers. Given interdependence in distress and quality of life in families coping with cancer, we expect that this caregiver-focused intervention will improve not only caregiver but also patient outcomes. Using a randomized controlled trial (RCT) design, patient-caregiver dyads will be randomized to the intervention or a waitlist control (WLC) arm. The intervention content will be delivered via three modes: education materials (i.e., workbook and video), two simulation-based caregiving skills training sessions, and two psychoeducation sessions addressing coping with caregiving-related role changes. The four manualized sessions will be nurse- led and tailored to the needs of the family’s current situation using a needs assessment driven approach. Patients and caregivers will complete self-report measures at baseline (prior to randomization) and 6 and 12 weeks later. We will assess patient and caregiver psychological symptoms, caregiver efficacy and role adjustment, and patient cancer-related symptoms as intervention outcomes. Because psychological distress in caregivers is associated with increased preventable healthcare utilization, we will abstract emergency department visits, hospital admissions, and unplanned oncologist visits from patients’ medical records. We will integrate qualitative accounts of the caregivers’ experiences with the multi-model intervention components. Feasibility data regarding consent, retention, adherence, and program evaluation will be recorded. The proposed work will provide rich pilot data that will inform a subsequent larger trial for formal efficacy testing of this innovative intervention seeking to improve cancer-related burden in this vulnerable yet understudied patient-caregiver population.
项目摘要/摘要 与其他癌症患者相比 通常,他们的家庭成员在疾病课程的早期就照顾和支持。同时照顾 相关活动一般都在征税,脑肿瘤患者的家庭护理人员面临与独特的挑战有关的 患者的认知能力下降,神经和运动定义,人格变化因疾病过程而变化 和治疗。随着典型的快速疾病进展和随后的患者功能下降,护理人员 越来越多地帮助患者进行日常生活活动(例如,沐浴,喂养,穿衣)以及协调 护理,症状和药物管理以及决策。本质上,护理人员提供基本 没有基于技能的培训的护理护理。此外,渴望明确的证据表明高照顾者困扰和伯恩, 这可能会影响他们护理患者的能力,看护人报告他们的支持需求通常是 多学科肿瘤学团队无人看管。实际上,神经肿瘤学通常缺乏 基于证据的支持护理干预措施。解决这些批判知识 差距,我们建议通过测试新型基于模拟的护理技能干预措施,以针对独特的需求 照顾者。考虑到应对癌症家庭的困扰和生活质量的相互依存,我们希望 这种以护理人员为中心的干预措施不仅可以改善护理人员,而且可以改善患者的结果。使用 随机对照试验(RCT)设计,患者护理人员二元组将随机分配给干预措施或 候补列表控制(WLC)臂。干预内容将通过三种模式提供:教育材料(即 工作簿和视频),两个基于模拟的护理技能培训课程和两个心理教育 会议解决与护理相关的角色变化的应对。四个手动会议将是护士 - 使用需求评估驱动器方法来满足家庭当前状况的领导和量身定制。患者 护理人员将在基线(随机化之前)和6周后完成自我报告措施。 我们将评估患者和护理人员的心理症状,护理人员效率和角色调整,以及 患者癌症相关的症状作为干预结果。因为护理人员的心理困扰是 与可预防的医疗保健利用相关,我们将抽象急诊室就诊, 医院入院和计划外的肿瘤科医生从患者的病历中就诊。我们将整合定性 护理人员在多模型干预组件中的经验。有关的可行性数据 将记录同意,保留,依从性和计划评估。拟议的工作将提供富人 试点数据将为随后的更大试验提供了对这种创新干预措施的正式效率测试的试验 在这个脆弱的且知识的患者护理人员中,改善与癌症相关的伯宁。

项目成果

期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)

暂无数据

数据更新时间:2024-06-01

Kathrin Milbury的其他基金

Psycho-Spiritual Management for Patients with Advanced Cancer and their Family Caregivers
晚期癌症患者及其家庭照顾者的心理精神管理
  • 批准号:
    10734689
    10734689
  • 财政年份:
    2023
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Simulation-Based Caregiving Skills Training for Family Members of High Grade Glioma Patients
高级别胶质瘤患者家属的模拟护理技能培训
  • 批准号:
    10693312
    10693312
  • 财政年份:
    2022
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Parenting Intervention for Caregivers who Parent a Young Child while Caring for a Spouse with an Incurable Cancer.
针对在照顾患有无法治愈癌症的配偶时养育幼儿的护理人员的育儿干预。
  • 批准号:
    10301442
    10301442
  • 财政年份:
    2021
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Improving Health Utilization and Quality of Life in Head and Neck Cancer Patients Undergoing Chemoradiation and their Family Caregivers
改善接受放化疗的头颈癌患者及其家庭护理人员的健康利用和生活质量
  • 批准号:
    10040568
    10040568
  • 财政年份:
    2020
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Improving Health Utilization and Quality of Life in Head and Neck Cancer Patients Undergoing Chemoradiation and their Family Caregivers
改善接受放化疗的头颈癌患者及其家庭护理人员的健康利用和生活质量
  • 批准号:
    10684253
    10684253
  • 财政年份:
    2020
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Improving Health Utilization and Quality of Life in Head and Neck Cancer Patients Undergoing Chemoradiation and their Family Caregivers
改善接受放化疗的头颈癌患者及其家庭护理人员的健康利用和生活质量
  • 批准号:
    10454943
    10454943
  • 财政年份:
    2020
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Improving Health Utilization and Quality of Life in Head and Neck Cancer Patients Undergoing Chemoradiation and their Family Caregivers
改善接受放化疗的头颈癌患者及其家庭护理人员的健康利用和生活质量
  • 批准号:
    10263936
    10263936
  • 财政年份:
    2020
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Dyadic yoga Program for Patients with Lung Cancer Undergoing Radiotherapy and their Family Caregivers
为接受放射治疗的肺癌患者及其家庭照顾者提供二元瑜伽课程
  • 批准号:
    9761506
    9761506
  • 财政年份:
    2018
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Dyadic yoga Program for Patients with Lung Cancer Undergoing Radiotherapy and their Family Caregivers
为接受放射治疗的肺癌患者及其家庭照顾者提供二元瑜伽课程
  • 批准号:
    9979799
    9979799
  • 财政年份:
    2018
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:
Dyadic yoga Program for Patients with Lung Cancer Undergoing Radiotherapy and their Family Caregivers
为接受放疗的肺癌患者及其家人提供的二元瑜伽课程
  • 批准号:
    10214568
    10214568
  • 财政年份:
    2018
  • 资助金额:
    $ 20.29万
    $ 20.29万
  • 项目类别:

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