BCI-DEF: Brain Computer Interfaces and Disability: Developing an Inclusive Ethical Framework

BCI-DEF：脑机接口与残疾：制定包容性的道德框架

• 批准号: 10508135
• 负责人: KAREN G HIRSCH
• 金额: $ 42.5万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-08 至 2026-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10508135
• 关键词: Acute; Acute Brain Injuries; Address; Affect; Area; Attitude; BRAIN initiative; Benefits and Risks; Brain; Brain Diseases; Brain Injuries; Caregivers; Chronic Care; Collaborations; Communication; Communication Disability; Critical Care; Data; Decision Making; Development; Devices; Disabled Persons; Engineering; Ensure; Ethical Issues; Ethicists; Ethics; Family; Family Caregiver; Family member; Funding; Funding Opportunities; Future; Healthcare; Hemorrhage; Human; Intervention; Interview; Justice; Measures; Methodology; Motor; Movement; Nervous System Trauma; Neurologic; Neurologic Deficit; Neurologist; Neurosciences Research; Neurosurgeon; Outcome; Participant; Pathway interactions; Patient Care; Patients; Perception; Personhood; Physicians; Policies; Privacy; Prognosis; Quality of life; Recommendation; Research; Research Personnel; Safety; Science; Series; Signal Transduction; Stroke; Structure; Subacute Care; Technology; Translations; Traumatic Brain Injury; Work; acute care; brain computer interface; clinical decision-making; clinical practice; deliberative democracy; design; disability; disability impact; experience; innovation; neuroregulation; neurotechnology; novel; physically handicapped; post stroke; recruit; relating to nervous system; social stigma; stakeholder perspectives; tool; usability

Project Summary/Abstract The objective of “Brain Computer Interfaces and Disability: Developing an Inclusive Ethical Framework (BCI- DEF)” is to use structured vignettes, video-supported interviews, and a deliberative democracy approach to assess and analyze diverse, critical stakeholder perspectives about the benefits, risks, and ethical challenges of Brain Computer Interface (BCI) technology. BCIs measure and interpret brain signals and interface with a device to allow users to perform a task, such as communication or movement. BCIs hold great promise, especially for end users with disability due to neurologic deficits in communication or motor function, but this potential may be limited by unaddressed ethical challenges. Issues of concern include stigma, autonomy, privacy, safety, impacts to personhood, responsibility and justice. Through the innovative approach in this project, we will focus on input from a primary group of potential end users (patients with neurologic disability and their family/caregivers) and clinicians who care for patients with acute neurologic injury to obtain critical and heretofore absent information about important focus areas related to ethics of BCI. The inclusion of additional key stakeholders including BCI engineers and research teams will further inform the deliberative democracy approach. Issues we will further investigate through this project include weighing the potential benefits and risks of BCI; evaluating ethical challenges surrounding BCI and disability including those around autonomy, stigma, and justice; impact of BCI on perceptions of disability and clinical decision making in acute brain injury; and defining critical information needed by end users, families, and clinicians to make future informed decisions about BCI use. This work is critical to ensure seamless, equitable, and ethical adaptation of innovative and cutting edge BCI technologies being developed through BRAIN Initiative projects.

项目概要/摘要 “脑机接口与残疾：开发包容性伦理框架（BCI- DEF）”是使用结构化的小插曲、视频支持的访谈和协商民主方法来 评估和分析不同的、关键的利益相关者对利益、风险和道德挑战的观点 脑机接口（BCI）技术的脑机接口测量和解释大脑信号并与接口连接。 允许用户执行任务（例如通信或移动）的设备具有很大的前景， 特别是对于因沟通或运动功能神经系统缺陷而残疾的最终用户，但这 潜力可能会受到未解决的道德挑战的限制，包括耻辱、自主权、 隐私、安全、对人格的影响、责任和正义。 项目中，我们将重点关注主要潜在最终用户群体（神经功能障碍患者）的意见 及其家人/护理人员）以及护理急性神经损伤患者以获得危重病的人员 迄今为止，还缺乏与 BCI 道德相关的重要重点领域的信息。 包括 BCI 工程师和研究团队在内的其他主要利益相关者将进一步为审议提供信息 我们将通过这个项目进一步研究的问题包括权衡潜力。 BCI 的益处和风险；评估围绕 BCI 和残疾（包括相关问题）的道德挑战 自主性、耻辱感和正义；BCI 对急性病患者残疾认知和临床决策的影响 脑损伤；并定义最终用户、家庭和战士创造未来所需的关键信息 这项工作对于确保无缝、公平和​​合乎道德的适应 BCI 至关重要。 通过 BRAIN Initiative 项目开发创新和尖端的 BCI 技术。